Working on a cure for cystinosis

The Cystinosis Research Foundation’s mission is two-fold and focused: to find better treatments and a cure for cystinosis. Funding quality research studies remains a priority and is an ongoing process.

Mission/History

The mission of the Cystinosis Research foundation is to support bench and clinical research that is focused on developing improved treatments and a cure for cystinosis.
Read about the Mission of the Cystinosis Research Foundation »

Natalie's Wish/Origin

In February 2003, on the eve of Natalie’s 12th birthday, Natalie made a birthday wish that no child should ever have to make.
Read about the origin of the Cystinosis Research Foundation »

Board of Directors

View the current list online.
Our Board of Directors »

Scientific Review Board

The Scientific Review Board is composed of leading cystinosis scientists, researchers and doctors from around the world.
Learn about the Scientific Review Board »

CRF Research Process

The Cystinosis Research Foundation’s mission is two-fold and focused: to find better treatments and a cure for cystinosis. Funding quality research studies remains a priority and is an ongoing process. The CRF announces two global calls for research proposals in the spring and fall of each year.
Learn about our research progress »


Save the Date for Natalie’s Wish Fundraiser– April 30th at the Balboa Bay Club, Newport Beach, CA
John Ondrasik

Join us Friday, April 30th for our annual Natalie’s Wish fundraising event at the beautiful Balboa Bay Club in Newport Beach, CA. Guests will enjoy a live performance by John Ondrasik of Five for Fighting, and a short film on cystinosis research progress. Then the bidding begins on fabulous items in our live auction, including fantastic travel and entertainment packages, jewelry and wine collections. This event is the highlight of our year, with many of our supporters and cystinosis families joining together for a night of hope and celebration in our quest to cure cystinosis. More information and invitations to come.

Join our mailing list by emailing info@cystinosisresearch.org with your contact information.