International Research Symposium

The Cystinosis Research Foundation (CRF) is sponsoring its Second International Cystinosis Research Symposium for researchers and scientists on Thursday April 8 and Friday April 9, 2010 at the Beckman Center of the National Academies of Sciences and Engineering near the University of California, Irvine campus.  Over sixty researchers from around the world will attend.

Investigators from the United States, Canada, France, Belgium, The Netherlands, Italy, Ireland and Germany will attend and many will present their current research on cystinosis.  All of the research that will be presented has received funding support from CRF. 

The purpose of the Symposium is to learn about research progress and foster collaborations among the researchers in order to hasten the progress in understanding and treating cystinosis.

Symposium Chairman
Jerry Schneider, M.D.
Dean for Academic Affairs Emeritus
School of Medicine, University of California, San Diego

Symposium Co-Chairs

Ranjan Dohil, M.D.
Professor of Pediatrics
Division Gastroenterology and Hepatology
University of California, San Diego


Corinne Antignac, M.D., Ph.D.
Department of Genetics
Director of Inserm Research Unit U574
Hospital Necker-Enfants Malades, Paris, France

 

Elena Levtchenko, M.D. Ph.D.
Associate Professor
University Hospital Leuven
Leuven, Belgium

Keynote Speakers
Jerry Schneider, M.D.
Elena Levtchenko, M.D. Ph.D.
Corinne Antignac, M.D., Ph.D

Session Moderators

Julie Ingelfinger, M.D.     

William Rizzo, M.D.

Daniel Saloman, M.D.

Adam Jonas, M.D.

Our first Cystinosis Research Foundation International Cystinosis Research Symposium was held in April 2008 at the prestigious Arnold and Mabel Beckman Center of the National Academies of Engineering and Science on the UCI campus. The event was attended by more than 60 researchers from the United States and Europe who have been working to achieve better treatments and a cure for cystinosis. Researchers funded by CRF presented their current bench and clinical studies on cystinosis.

“The symposium was very important for cystinosis because many of the participants began sharing information on their research efforts – information that generally isn’t shared until it’s published, which often takes months or years. This can only help accelerate new medical and scientific advancements we’ve been working to achieve for so many years,” said Dr. Jerry Schneider, co-chairman of the symposium.

2008 International Research Symposium Agenda (pdf)

2008 Post-Symposium Press Release (pdf)

 


Save the Date for Natalie’s Wish Fundraiser– April 30th at the Balboa Bay Club, Newport Beach, CA
John Ondrasik

Join us Friday, April 30th for our annual Natalie’s Wish fundraising event at the beautiful Balboa Bay Club in Newport Beach, CA. Guests will enjoy a live performance by John Ondrasik of Five for Fighting, and a short film on cystinosis research progress. Then the bidding begins on fabulous items in our live auction, including fantastic travel and entertainment packages, jewelry and wine collections. This event is the highlight of our year, with many of our supporters and cystinosis families joining together for a night of hope and celebration in our quest to cure cystinosis. More information and invitations to come.

Join our mailing list by emailing info@cystinosisresearch.org with your contact information.