News

01-12-2010 Cystinosis Resarch Foundation Awards $1.75 Million In Scientific Grants
10-19-2009 Third Annual Fore A Cure Golf Tournament Raises $165,000
08-06-2009 Cystinosis Research Foundation Awards $1.6 Million in Grants to Find Cure for Deadly Genetic Disease
06-16-2009 Jason Grier Elected to Board of Directors
05-21-2009 Eighth Annual Natalie's Wish Event Raises $2.3 Million
04-15-2009 Anonymous Donor Issues Unprecedented $1-Million Challenge Grant
03-09-2009 2009 Science Report on Genetic Disease Released by Cystinosis Research Foundation
02-24-2009 Cystinosis Research Foundation Funds Researchers in U.S. And Europe to Unlock Mysteries Of Rare Disease
02-12-2009 Mitch Albom To Be Featured Speaker At Natalie's Wish Fundraiser
12-01-2008 Thanksgiving Letter 2008
10-10-2008 Scientific Abstracts on Cystinosis Research Are Published in October Issue of Pediatric Nephrology
09-23-2008 Bailey Gets His Wish
09-03-2008 Second Annual Fore A Cure Golf Tournament Announced
07-22-2008 Cystinosis Research Foundation Awards $1,316,361 for Nine Cystinosis Research Studies
06-03-2008 More Than $1.8 Million Raised at Seventh Annual Natalie’s Wish Event
04-15-2008 Leading Cystinosis Researcher Says Advancements in Treatments and Cure of Cystinosis May be Hastened Following First International Research Symposium
11-26-2007 CRF Funds Five New Scientific Studies Totaling $662,658
11-09-2007 First Annual Fore A Cure Golf Tournament Held October 1, Raises $240,000
06-13-2007 Sacramento Couple Have Big Impact In Efforts To Fund Research For Cystinosis
05-15-2007 Cystinosis Research Foundation Announces Board of Directors
03-14-2007 Famed NFL Quarterback Jim Kelly To Headline ‘Natalie’s Wish’ Fundraiser



Save the Date for Natalie’s Wish Fundraiser– April 30th at the Balboa Bay Club, Newport Beach, CA
John Ondrasik

Join us Friday, April 30th for our annual Natalie’s Wish fundraising event at the beautiful Balboa Bay Club in Newport Beach, CA. Guests will enjoy a live performance by John Ondrasik of Five for Fighting, and a short film on cystinosis research progress. Then the bidding begins on fabulous items in our live auction, including fantastic travel and entertainment packages, jewelry and wine collections. This event is the highlight of our year, with many of our supporters and cystinosis families joining together for a night of hope and celebration in our quest to cure cystinosis. More information and invitations to come.

Join our mailing list by emailing info@cystinosisresearch.org with your contact information.