Scientific Review Board

The Cystinosis Research Foundation Scientific Review Board is composed of leading cystinosis scientists, researchers and doctors from around the world. The members are actively involved in the grant review process and advise the Cystinosis Research Foundation on the merit of each proposal, submit funding recommendations and offer general research guidelines. The Cystinosis Research Foundation is indebted to our Scientific Review Board members for their guidance and commitment to helping our children.

Chairperson

Jerry A. Schneider, MD
Research Professor of Pediatrics
Dean for Academic Affairs Emeritus
University of California, San Diego
San Diego, California

Board Members

Corinne Antignac, MD, PhD
Department of Genetics
Director of Inserm Research Unit U574
Hospital Necker-Enfants Malades
Paris, France

Stephanie Cherqui, PhD
Assistant Professor
The Scripps Research Institute
La Jolla, California

 

Francesco Emma, MD
Head of Pediatric Nephrology
Director of Hephrology Labratory
Bambino Gesù Children's Hospital
Rome, Italy

 

Julie R. Ingelfinger, MD
Deputy Editor of the New England Journal of Medicine
Professor of Pediatrics
Harvard Medical School
Boston, Massachusetts

 

Adam J. Jonas, MD
Chairman, Department of Pediatrics
Harbor-UCLA Medical Center
Professor Pediatrics
Geffen School of Medicine at UCLA
Los Angeles, California

Elena Levtchenko, MD, PhD
Associate Professor
University Hospital Leuven
Leuven, Belgium

William Rizzo, MD
Department of Pediatrics
Chief, Inherited Metabolic Diseases
University of Nebraska Medical Center
Omaha, Nebraska

 


Save the Date for Natalie’s Wish Fundraiser– April 30th at the Balboa Bay Club, Newport Beach, CA
John Ondrasik

Join us Friday, April 30th for our annual Natalie’s Wish fundraising event at the beautiful Balboa Bay Club in Newport Beach, CA. Guests will enjoy a live performance by John Ondrasik of Five for Fighting, and a short film on cystinosis research progress. Then the bidding begins on fabulous items in our live auction, including fantastic travel and entertainment packages, jewelry and wine collections. This event is the highlight of our year, with many of our supporters and cystinosis families joining together for a night of hope and celebration in our quest to cure cystinosis. More information and invitations to come.

Join our mailing list by emailing info@cystinosisresearch.org with your contact information.