Cystinosis Community Forums

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  1. Welcome Last Post

    1. Introduce Yourself

      Let us know who you are!

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    2. Frequently Asked Questions About the Forums

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  2. Cure Cystinosis International Registry Registry (CCIR) Last Post

    1. Be Counted - Be Part of the Cure - Register Today!

      Learn more about cystinosis and help the researchers and scientists find a cure and better treatments. Register today www.cystinosisregistry.org Let's get 100% of our community to register - together and united we will find a cure!

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  3. Treating Cystinosis Last Post

    1. Newly Diagnosed

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    2. Cystagon, Eye Drops and Other Medications

      (1 Viewing)

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      • Threads: 9
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    3. G- tubes and Growth Hormones

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    4. Kidneys, Transplants and Dialysis

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      • Threads: 3
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    5. Gastrointestinal Issues

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    6. Learning Challenges

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    7. Other Symptoms and Difficulties

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    8. Making a Move from Pediatrics to Adult Care

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  4. Families Helping Families Last Post

    1. Share Your Ideas and Advice

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    2. Products to Make Life Easier

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    3. Stress and Coping With Cystinosis

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  5. Research and Cystinosis Last Post

    1. Clinical Trials - Ongoing and Future

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      • Threads: 9
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  6. Families Together For A Cure Last Post

    1. Happy Birthday

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      • Threads: 11
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    2. A Day of Hope

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      • Threads: 5
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    3. Share Your Events

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      • Threads: 5
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    4. Connect with Families Near You

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    5. Grandparents Are Involved!

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    6. Teenagers and Young People

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      • Threads: 1
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There are currently 7 users online. 0 members and 7 guests

Most users ever online was 143, 12-14-2011 at 10:33 AM.

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